Real stories from
The Myositis Collab

Watch Sandy’s* story about living with polymyositis.

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CONTRIBUTORS’ NOTES

What’s new from
The Myositis Collab

Our latest articles and resources bring together learnings from across the myositis community. You’ll find information about patient advocacy organizations, tips for communicating with your care team, and learn about the most common myositis treatment options.

And there’s more to come. Thank you for being here with us.

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The Myositis Collab

Individual voices. Collective wisdom.

The Myositis Collab was created to amplify the voices of the myositis community, because their wisdom comes from their lived experience. Whether you are living with dermatomyositis, immune-mediated necrotizing myopathy, antisynthetase syndrome, polymyositis, or inclusion body myositis, the articles below are meant to help you find a deeper understanding and provide information that you might use in your daily life.

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Two hands holding a tablet with doctor discussion guide on screen

Doctor Discussion Guide

Make the most of conversations with your care team no matter where you are on your journey.

DOWNLOAD THE GUIDE