Real stories from The Myositis Collab

A community-driven resource for people living with myositis—like Sandy.

CONTRIBUTORS’ NOTES

Welcome to
The Myositis Collab

Our first collection of content features voices from around the myositis community with a common theme: practical ways to make everyday life with myositis a little more manageable. You'll find information about subtypes, a few life hacks to try, and travel tips from Sandy—a travel expert living with myositis.

We’re just getting started and so glad you’re here.

Contributors smiling
Contributors smiling
The Myositis Collab

Individual voices. Collective wisdom.

The Myositis Collab was created to amplify the voices of the myositis community, because their wisdom comes from their lived experience. Whether you are living with dermatomyositis, immune-mediated necrotizing myopathy, antisynthetase syndrome, or inclusion body myositis, the articles below are meant to help you find a deeper understanding and provide information that you might use in your daily life.

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Latest articles

What is The Myositis Collab?
Living with Myositis

What is The Myositis Collab?

Stories, wisdom, and information for people living with myositis.

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Myositis mindset: mental health tips straight from the community
Living with Myositis

Myositis mindset: mental health tips straight from the community

People with myositis talk about how they manage their mental health.

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Understanding myositis and what it means for you
Living with Myositis

Understanding myositis and what it means for you

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Travel lessons learned—Sandy’s story
Real People, Real Stories

Travel lessons learned—Sandy’s story

Sandy, a travel expert, mother of two, and grandmother living with myositis, tells her story.

READ MORE
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