What is The Myositis Collab?
What is The Myositis Collab?

What is The Myositis Collab?

Stories, wisdom, and information for people living with myositis

The myositis community is made up of thousands of people—and each one with a relatable story or helpful piece of advice to share.

The goal of The Myositis Collab is to empower people living with myositis and their supporters by sharing real stories, earned wisdom, and reliable information from the community. We believe that these individual contributions, when brought together, could well be the community’s greatest source of strength.

A group of 6 people hugging and posing for a photo A group of 6 people hugging and posing for a photo A group of 6 people hugging and posing for a photo

What The Myositis Collab can provide

Featuring the wisdom of people who understand what you’re going through, The Myositis Collab offers perspectives from the community, information from healthcare professionals, and more.

Just as your journey with myositis evolves, so will this website. Stay tuned for updates that include:

Conversations with the community

Watch, listen to, and read stories from healthcare providers and people living with myositis and their supporters.

  • Learn about myositis from experts, including physical therapists, nutritionists, licensed mental health counselors, and more
  • Discover stories of people with myositis and their care partners who’ve been where you are

Practical resources for every day

Explore community-sourced tips for managing everyday life with myositis. Because everyone’s goals are different, these tips will fall into different categories, like:

  • Discussions with your care team and support circle
  • Exercise and mobility
  • Stress management and emotional support
  • Cooking and nutrition
  • Home accessibility
  • Travel

With more to come!

Information about myositis treatment options

Learn about the variety of myositis treatment options that are currently available. Plus, get more information about the future of treatment, including options being evaluated in clinical trials.

“I thrive on community because it really helps.”
Sandy, living with polymyositis

Living with myositis often means taking things day by day. By tapping into the wisdom of an entire community and sharing relatable stories and reliable information, The Myositis Collab is here to help you navigate every day, one day at a time.

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