Individual voices. Collective wisdom.

The purpose of The Myositis Collab

To create a place where voices from across the myositis community can come together to find and share practical tips, honest stories, encouragement, and hope. Because we are smarter and stronger together.

What we believe

We believe in the power of shared experience,

In the quiet wisdom of the day to day,

In the small adjustments that can make hard days a little easier,

In the strength that grows when we learn from one another.

We believe no one living with myositis should have to navigate it alone.

Meet a few of our contributors

The Myositis Collab isn’t possible without contributors* from the myositis community. Each one has a unique lived experience with myositis and a strong desire to share the wisdom they’ve learned through the years.

Community advocacy partners

Patient advocacy organizations may also help to provide support and hope. These groups are often created by people living with conditions like myositis, bringing community members together to build connection and awareness.